Legislation

Establishing the Rare Disease Advisory Council to study and make recommendations on matters relating to individuals with rare diseases in the State; requiring the Council to convene public hearings, make inquiries, and solicit comments from the public on the needs of rare disease patients, caregivers, and health care providers; requiring the Council to report to the Governor and General Assembly by December 1 each year beginning in 2024 and to provide recommendations on ways to address the needs of persons with rare diseases in the State; etc.

Committees

Original:: Health and Government Operations Click to view Recorded Media

Opposite:: Finance

Committee Testimony

Witness List

Details

Cross-filed with: SB0188

Bill File Type: Regular

Effective Date(s): October 1, 2023

Creates a Task Force or Commission

History

Legislation History
Chamber House Calendar Date 1/25/2023 Legislative Date 1/25/2023 Action First Reading Health and Government Operations Proceedings
Chamber Calendar Date Legislative Date Action Text - First - Public Health - Rare Disease Advisory Council Proceedings
Chamber House Calendar Date 1/29/2023 Legislative Date 1/29/2023 Action Hearing 2/14 at 1:00 p.m. Proceedings
Chamber Calendar Date Legislative Date Action Vote - House - Committee - Health and Government Operations Proceedings Click to view Recorded Media
Chamber House Calendar Date 2/27/2023 Legislative Date 2/27/2023 Action Favorable with Amendments Report by Health and Government Operations Proceedings
Chamber House Calendar Date 2/28/2023 Legislative Date 2/25/2023 Action Favorable with Amendments {863725/1 Adopted Proceedings 34 Click to view Recorded Media
Chamber House Calendar Date 2/28/2023 Legislative Date 2/25/2023 Action Second Reading Passed with Amendments Proceedings 34 Click to view Recorded Media
Chamber Calendar Date Legislative Date Action Text - Third - Public Health - Rare Disease Advisory Council Proceedings
Chamber House Calendar Date 3/02/2023 Legislative Date 2/27/2023 Action Third Reading Passed (130-0) Proceedings 36 Click to view Recorded Media
Chamber Senate Calendar Date 3/03/2023 Legislative Date 2/28/2023 Action Referred Finance Proceedings 37 Click to view Recorded Media
Chamber Calendar Date Legislative Date Action Vote - Senate - Committee - Finance Proceedings Click to view Recorded Media
Chamber Senate Calendar Date 3/31/2023 Legislative Date 3/31/2023 Action Favorable Report by Finance Proceedings
Chamber Senate Calendar Date 3/31/2023 Legislative Date 3/21/2023 Action Favorable Adopted Second Reading Passed Proceedings 58 Click to view Recorded Media
Chamber Senate Calendar Date 4/05/2023 Legislative Date 3/23/2023 Action Third Reading Passed 46-0 Proceedings 60 Click to view Recorded Media
Chamber House Calendar Date 4/05/2023 Legislative Date 3/25/2023 Action Returned Passed Proceedings 62 Click to view Recorded Media
Chamber Post Passage Calendar Date 5/03/2023 Legislative Date 5/03/2023 Action Approved by the Governor - Chapter 360 Proceedings
Chamber Calendar Date Legislative Date Action Text - Chapter - Public Health - Rare Disease Advisory Council Proceedings

Chamber	Calendar Date	Legislative Date	Action	Proceedings
House	1/25/2023	1/25/2023	First Reading Health and Government Operations
			Text - First - Public Health - Rare Disease Advisory Council
House	1/29/2023	1/29/2023	Hearing 2/14 at 1:00 p.m.
			Vote - House - Committee - Health and Government Operations	Click to view Recorded Media
House	2/27/2023	2/27/2023	Favorable with Amendments Report by Health and Government Operations
House	2/28/2023	2/25/2023	Favorable with Amendments {863725/1 Adopted	34 Click to view Recorded Media
House	2/28/2023	2/25/2023	Second Reading Passed with Amendments	34 Click to view Recorded Media
			Text - Third - Public Health - Rare Disease Advisory Council
House	3/02/2023	2/27/2023	Third Reading Passed (130-0)	36 Click to view Recorded Media
Senate	3/03/2023	2/28/2023	Referred Finance	37 Click to view Recorded Media
			Vote - Senate - Committee - Finance	Click to view Recorded Media
Senate	3/31/2023	3/31/2023	Favorable Report by Finance
Senate	3/31/2023	3/21/2023	Favorable Adopted Second Reading Passed	58 Click to view Recorded Media
Senate	4/05/2023	3/23/2023	Third Reading Passed 46-0	60 Click to view Recorded Media
House	4/05/2023	3/25/2023	Returned Passed	62 Click to view Recorded Media
Post Passage	5/03/2023	5/03/2023	Approved by the Governor - Chapter 360
			Text - Chapter - Public Health - Rare Disease Advisory Council

File Code

Subjects

Statutes