Legislation

Title: Public Health - Rare Disease Advisory Council
Sponsored by: Senators Lam, Rosapepe, Salling, Muse, Carozza, Kramer, and Benson
Status: Approved by the Governor - Chapter 361
Analysis: Fiscal and Policy Note (Revised)

Synopsis

Establishing the Rare Disease Advisory Council to study and make recommendations on matters relating to individuals with rare diseases in the State; requiring the Council to convene public hearings, make inquiries, and solicit comments from the public on the needs of rare disease patients, caregivers, and health care providers; requiring the Council to report to the Governor and General Assembly by December 1 each year beginning in 2024 and provide recommendations on ways to address the needs of persons with rare diseases in the State; etc.

Committees

Original:: Finance Click to view Recorded Media

Opposite:: Health and Government Operations Click to view Recorded Media

Committee Testimony

Witness List

Details

Cross-filed with: HB0302

Bill File Type: Regular

Effective Date(s): October 1, 2023

Creates a Task Force or Commission

History

Legislation History
Chamber Senate Calendar Date 1/20/2023 Legislative Date 1/20/2023 Action First Reading Finance Proceedings
Chamber Calendar Date Legislative Date Action Text - First - Public Health - Rare Disease Advisory Council Proceedings
Chamber Senate Calendar Date 1/20/2023 Legislative Date 1/20/2023 Action Hearing 2/07 at 1:00 p.m. Proceedings
Chamber Calendar Date Legislative Date Action Vote - Senate - Committee - Finance Proceedings Click to view Recorded Media
Chamber Senate Calendar Date 2/20/2023 Legislative Date 2/20/2023 Action Favorable with Amendments Report by Finance Proceedings
Chamber Senate Calendar Date 2/21/2023 Legislative Date 2/21/2023 Action Favorable with Amendments {533921/1 Adopted Proceedings 30 Click to view Recorded Media
Chamber Senate Calendar Date 2/21/2023 Legislative Date 2/21/2023 Action Second Reading Passed with Amendments Proceedings 30 Click to view Recorded Media
Chamber Calendar Date Legislative Date Action Text - Third - Public Health - Rare Disease Advisory Council Proceedings
Chamber Senate Calendar Date 2/24/2023 Legislative Date 2/24/2023 Action Third Reading Passed (44-0) Proceedings 33 Click to view Recorded Media
Chamber House Calendar Date 2/27/2023 Legislative Date 2/24/2023 Action Referred Health and Government Operations Proceedings 33AClick to view Recorded Media
Chamber House Calendar Date 3/14/2023 Legislative Date 3/14/2023 Action Hearing 3/21 at 1:00 p.m. Proceedings
Chamber Calendar Date Legislative Date Action Vote - House - Committee - Health and Government Operations Proceedings Click to view Recorded Media
Chamber House Calendar Date 4/03/2023 Legislative Date 4/03/2023 Action Favorable Report by Health and Government Operations Proceedings
Chamber House Calendar Date 4/03/2023 Legislative Date 3/21/2023 Action Favorable Adopted Second Reading Passed Proceedings 58 Click to view Recorded Media
Chamber House Calendar Date 4/05/2023 Legislative Date 3/25/2023 Action Third Reading Passed (136-0) Proceedings 62 Click to view Recorded Media
Chamber Senate Calendar Date 4/06/2023 Legislative Date 3/24/2023 Action Returned Passed Proceedings 61 Click to view Recorded Media
Chamber Post Passage Calendar Date 5/03/2023 Legislative Date 5/03/2023 Action Approved by the Governor - Chapter 361 Proceedings
Chamber Calendar Date Legislative Date Action Text - Chapter - Public Health - Rare Disease Advisory Council Proceedings

Chamber	Calendar Date	Legislative Date	Action	Proceedings
Senate	1/20/2023	1/20/2023	First Reading Finance
			Text - First - Public Health - Rare Disease Advisory Council
Senate	1/20/2023	1/20/2023	Hearing 2/07 at 1:00 p.m.
			Vote - Senate - Committee - Finance	Click to view Recorded Media
Senate	2/20/2023	2/20/2023	Favorable with Amendments Report by Finance
Senate	2/21/2023	2/21/2023	Favorable with Amendments {533921/1 Adopted	30 Click to view Recorded Media
Senate	2/21/2023	2/21/2023	Second Reading Passed with Amendments	30 Click to view Recorded Media
			Text - Third - Public Health - Rare Disease Advisory Council
Senate	2/24/2023	2/24/2023	Third Reading Passed (44-0)	33 Click to view Recorded Media
House	2/27/2023	2/24/2023	Referred Health and Government Operations	33AClick to view Recorded Media
House	3/14/2023	3/14/2023	Hearing 3/21 at 1:00 p.m.
			Vote - House - Committee - Health and Government Operations	Click to view Recorded Media
House	4/03/2023	4/03/2023	Favorable Report by Health and Government Operations
House	4/03/2023	3/21/2023	Favorable Adopted Second Reading Passed	58 Click to view Recorded Media
House	4/05/2023	3/25/2023	Third Reading Passed (136-0)	62 Click to view Recorded Media
Senate	4/06/2023	3/24/2023	Returned Passed	61 Click to view Recorded Media
Post Passage	5/03/2023	5/03/2023	Approved by the Governor - Chapter 361
			Text - Chapter - Public Health - Rare Disease Advisory Council

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Subjects

Statutes